Journal Articles
Permanent URI for this collectionhttps://mro.massey.ac.nz/handle/10179/7915
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Item Single cases from multiple perspectives: a qualitative study comparing the experiences of patients, patients’ caregivers, surgeons, and nurses when bad news is delivered about cancer(Wolters Kluwer Health Inc, 2020-10) Matthews T; Baken D; Ross KBackground: Qualitative literature on the experiences of those delivering and receiving bad news about cancer has revealed what these parties consider important during the process across many different patient cases. The current study aims to add to this understanding by employing a “linked case" study design to directly compare the perspectives of patients, their caregivers, and health care professionals (HCPs) involved in a series of single-patient cases of breaking bad news. Method: Semistructured interviews were conducted with 13 participants (5 patients, 4 caregivers, 2 surgeons, and 2 nurses) who formed 5 linked cases. Interviews were analyzed using interpretative phenomenological analysis and directly compared within each linked case. Results: Analyses identified 2 main superordinate themes. The first labeled “accurately perceiving and responding to needs," included HCPs recognizing and responding to patients’ and caregivers’ individual emotional and informational needs. The second labeled “carers fulfilling necessary roles," identified the various roles HCPs and patients’ caregivers took to satisfactorily meet patients’ needs. Conclusions: The findings suggest the importance of HCPs accurately perceiving and responding to patients’ and caregivers’ various needs and caregivers ability and willingness to fulfilling support roles in a way that aligns with their own resources and patients’ needs. This highlights the value of HCPs developing and applying interpersonal skills within bad news encounters, working as a team, and exploring caregivers’ resources for patient support.Item Misinformation effects in an online sample: results of an experimental study with a five day retention interval(PeerJ Inc, 2021-11-18) Sievwright O; Philipp M; Drummond A; Knapp K; Ross KTraditional face-to-face laboratory studies have contributed greatly to our understanding of how misinformation effects develop. However, an area of emerging concern that has been relatively under-researched is the impact of misinformation following exposure to traumatic events that are viewed online. Here we describe a novel method for investigating misinformation effects in an online context. Participants (N = 99) completed the study online. They first watched a 10-min video of a fictional school shooting. Between 5 and 10 days later, they were randomly assigned to receive misinformation or no misinformation about the video before completing a recognition test. Misinformed participants were less accurate at discriminating between misinformation and true statements than control participants. This effect was most strongly supported by ROC analyses (Cohen’s d = 0.59, BF10 = 8.34). Misinformation effects can be established in an online experiment using candid violent viral-style video stimuli.Item Developmental and epileptic encephalopathy: Personal utility of a genetic diagnosis for families(Wiley Periodicals LLC on behalf of International League Against Epilepsy, 2021-03) Jeffrey JS; Leathem J; King C; Mefford HC; Ross K; Sadleir LGObjectives Identifying genetic pathogenic variants improves clinical outcomes for children with developmental and epileptic encephalopathy (DEE) by directing therapy and enabling accurate reproductive and prognostic information for families. We aimed to explore the additional personal utility of receiving a genetic diagnosis for families. Methods Semi-structured interviews were conducted with fifteen families of children with a DEE who had received a genetic diagnosis. The interviews stimulated discussion focusing on the impact of receiving a genetic diagnosis for the family. Interview transcripts were analyzed using the six-step systematic process of interpretative phenomenological analysis (IPA). Results Three key themes were identified: “Importance of the label,” “Relief to end the diagnostic journey,” and “Factors that influence personal utility.” Families reported that receiving a genetic label improved their knowledge about the likely trajectory of the DEE, increased their hope for the future, and helped them communicate with others. The relief of finally having an answer for the cause of their child's DEE alleviated parental guilt and self-blame as well as helped families to process their grief and move forward. Delay in receipt of a genetic diagnosis diluted its psychological impact. Significance To date, the factors associated with the personal utility of a genetic diagnosis for DEEs have been under appreciated. This study demonstrates that identifying a genetic diagnosis for a child's DEE can be a psychological turning point for families. A genetic result has the potential to set these families on an adaptive path toward better quality of life through increased understanding, social connection, and support. Early access to genetic testing is important as it not only increases clinical utility, but also increases personal utility with early mitigation of family stress, trauma, and negative experiences.Item Youth Encounters with Internet Pornography: A Survey of Youth, Caregiver, and Educator Perspectives(Springer Science+Business Media LLC, 2022-04-01) Healy-Cullen S; Taylor JE; Ross K; Morison TDespite international inquiry regarding young people’s encounters with Internet pornography (IP), there is a lack of knowledge about how their caregivers (parents or guardians) and educators perceive these encounters in comparison to young people. Such knowledge is critical to understanding the synergies and discrepancies that might exist between these key stakeholder groups (youth, caregivers and educators) and across genders, to subsequently inform how to best support youth in navigating IP. To this end, the present study describes youth (16–18-year olds) encounters with IP, as well as caregiver and educator perceptions of these encounters. An online survey was completed by 256 youth and 217 caregivers and educators recruited from nine schools with an existing investment in sexuality education in Aotearoa, New Zealand. Similar to global trends, this group of young New Zealanders were familiar with IP and patterns of encounters were gendered. However, there were varied understandings between stakeholder groups and across genders as to why and how these encounters occur. Understanding the ways youth encounter IP—and exploring how caregivers and educators perceive these encounters—serves as a springboard for future research that considers the broader socio-cultural context within which these perspectives are constructed.Item How do youth, parents, and educators use discursive sexual scripts to make sense of youth engagement with internet pornography?(Taylor and Francis Group, 2022-12) Healy-Cullen S; Morison T; Ross K; Taylor JEIn this article, we explore how culturally available sexual scripts are drawn on to make meaning of young people’s engagement with internet pornography (IP). We draw on a version of sexual scripting theory developed by feminist discursive scholars to perform a critical thematic analysis of 24 interviews with parents, educators, and young people. We identify three main scripts commonly drawn on by participants to make sense of youth engagement with IP, namely: a script of harm, a heterosexual script, and a developmentalist script. These scripts, often interweaving with one another, were deployed in various ways, firstly, as ‘risk talk’ and, secondly, as ‘resistant talk’. While both adults and youth engaged with dominant (‘risk’) and alternative (‘resistant’) talk, adults primarily positioned youth within ‘risk talk’. We show how alternative ‘resistant talk’ disrupts common, scripted ways of accounting for youth engagement with IP in a way that demonstrates more nuanced sexual subjectivities – particularly among youth – than the traditional media effects paradigm acknowledges. Importantly, our findings show how, within discursive restraints, essentialized gender constructions can be resisted to position youth as agentic sexual subjects.Item Using Q-Methodology to Explore Stakeholder Views about Porn Literacy Education(Springer Nature Switzerland AG, 2022-06) Healy-Cullen S; Taylor JE; Morison T; Ross KIntroduction ‘Porn literacy education’ is emerging as a pedagogical strategy to support youth in navigating the new technological pornography landscape. However, the characteristics of effective porn literacy education according to those who will be most affected by it—young people, their caregivers and educators—is unknown. Yet, end user views are imperative to policy development in sexuality education worldwide. Methods Using Q-methodology, the commonalities and idiosyncrasies of these stakeholder views were explored. In 2019, 30 participants recruited through nine schools in New Zealand completed an online Q sort, and 24 also took part in a follow-up interview. Results There were two distinct discourses regarding porn literacy education among stakeholders: (i) the pragmatic response discourse and (ii) the harm mitigation discourse. Conclusions Stakeholders hold nuanced and ideologically charged perspectives about porn literacy education and educational initiatives more generally. It is therefore important that policy caters for these different perspectives and that a 'one-size-fits-all' policy approach is acknowledged as insufficient. Policy Implications It is crucial that policy development is guided by evidence about what constitutes effective sexuality education. The social discourses reported here are important to consider in developing policy about porn literacy education and require further research to more fully understand the potential of porn literacy as pedagogy.Item The Experiences of Mothers in a Neonatal Unit and Their Use of the Babble App(1/01/2021) Gibson C; Ross K; Williams M; de Vries NTo better understand the experiences of mothers with an infant admitted to a neonatal unit and ascertain their perspectives on an available information support app, Babble, eight mothers with an infant admitted to a Level II+ neonatal unit were interviewed. Thematic analysis was utilized and responses indicated that mothers of neonates experienced challenges around adapting to the maternal role and managing their expectations of motherhood. Relationships with staff were seen as pivotal in the development of maternal confidence and essential to the overall experience. Mothers prioritized informational support, but how mothers sought out this information depended on their individual needs. Mothers who reported using the Babble app found it to be a helpful supplementary resource, tailorable to their situation. Results suggest that greater staff awareness of parental perspectives and the development of adaptable and diverse resources, ensuring parents are provided with individualized and appropriate care, is needed.Item Providing clinical health psychology services in a primary health world(New Zealand Psychological Society Inc., 2009) Ross K; Malthus S; Berrett M; Harvey SIndividuals with chronic health conditions are at greater risk of emotional and behavioural problems, including mental health issues such as anxiety, depression, risk taking behaviours, body image and eating disorders, as well as social difficulties (Barlow & Ellard, 2006; Berge & Patterson, 2004; Weiser, 2007). These psychological issues can impact on an individual's ability to cope with their physical condition. Family members of an individual with a chronic health condition are also at risk of psychological distress. To date, there has been a notable absence of psychological support services, both for individuals and their families affected by chronic illness. A new MidCentral Health initiative focussed on the provision of psychological services for adults, children and their families with chronic illness has recently been established at Massey University's Palmerston North Psychology Clinic. These Services are among the first of their kind in New Zealand, and have implications for the management of individuals with chronic health conditions in the primary health sector. This article will outline the aims and establishment of the Services, along with a discussion of evidence-based therapeutic interventions, illustrated by case studies.Item Exploring the needs and coping strategies of New Zealand parents in the neonatal environment(Wiley, 17/02/2022) Dodge A; Gibson C; Williams M; Ross KAim Having an infant admitted to a neonatal care facility can be highly distressing for parents given the fragile state of their child and the often-unfamiliar environment. This study aimed to explore the needs and coping strategies of parents in this setting. Methods An online qualitative survey was used to explore the needs of parents who had a child discharged from a New Zealand neonatal unit in the past 12 months. A total of 394 parents participated in the study (387 mothers, 5 fathers), providing 970 responses across three open-ended questions examining their needs, unmet needs and coping strategies. The study included participants across both neonatal intensive care units and special care baby units, with prematurity (47%) the most common reason for admission. An inductive form of thematic analysis was used to analyse the data. Results Four themes were developed that capture the needs and coping strategies expressed by parents in this study: communication and information; physical contact and access to the baby; emotional and non-medical support; and involvement, autonomy and respect. Conclusions The themes developed largely centre around the struggle parents face when confronting the uncertainty of the neonatal environment and the difficulty in establishing their parental role. Parental distress may be reduced through communicating accurate information regularly and providing empathetic understanding, while opportunities for physical contact and involvement may assist in raising parental confidence and scaffolding the journey to independent care of their infant.Item Facebooking a different campaign beat: party leaders, the press and public engagement(SAGE Publications, 2020-11) Ross K; Fountaine S; Comrie MSocial media are increasingly entrenched in politicians’ campaigning. Yet even as they become more ubiquitous, evidence suggests widely used platforms normalize rather than equalize the existing power dynamics of the political landscape. Our study of New Zealand’s 2017 general election uses a mixed-method approach including analysis of five Party Leaders’ (PLs) public Facebook wall posts, campaign coverage in four newspapers and interviews with Party workers and MPs. Our findings show PLs seldom interact with citizens and mostly use posts to promote campaign information. Citizens are more likely to ‘like’ a PL’s post than share or comment and there are important divergences between Party and media agendas. These findings demonstrate not only the importance of social media for Parties’ attempts to control messaging and disrupt journalistic interference, but also highlight that neither Parties nor citizens seem much invested in dialogue. However, understanding which posts excite citizen engagement may help all Parties more effectively promote participatory democracy globally.
