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    Exploring the psychosocial needs of Tongan families in Hospice care : a thesis presented in partial fulfilment of the requirements for the degree of Master of Science (Psychology with endorsement in Health Psychology) at Massey University, Albany Campus, New Zealand
    (Massey University, 2018) Pulu-Lakai, Veisinia
    Caring for a loved one with a life-threatening illness has a great impact on the carer's psychosocial wellbeing. In Aotearoa-New Zealand, Tongan families are accessing hospice care; however, limited to no research has been conducted on their experiences of hospice care particularly regarding their psychosocial needs. Therefore, this qualitative study explores the psychosocial needs of Tongan families in hospice care to identify strategies that can help improve palliative care and support for Tongan family carers. This study employs the Tongan Kakala methodological framework as a methodology within the growing suite of Pacific methodologies. Within the Kakala framework, the talanoa (Tongan way of dialogue) is a tool utilized to gather data. Five participants are involved in this study who were primary family carers of Tongan heritage who accessed hospice care and resided in Auckland. A total of five family-based talanoa sessions were completed, transcribed and analysed through thematic analysis. As a result, five psychosocial needs linked to caregiving were identified: limited knowledge and information regarding hospice care, ineffective communication by health professionals, lack of engagement by health professionals, dissatisfaction with spiritual support provided by hospice care, and lack of discussion and shared planning for future health care. Recognizing the Tongan family carers’ psychosocial needs led to identifying strategies that would help provide optimal palliative care support for Tongan families in hospice care. This includes hospice service providing care in a way that is culturally sensitive and competent for the family carers, delivering culturally appropriate education about hospice care, employing Tongan health professionals, and increasing engagement by health professionals. Implementing these strategies would help reduce the psychosocial burden of caregiving and lead to better health outcomes for both the Tongan family carers and patients.
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    Te tatau o te pō : perceptions and experiences of palliative care and hospice -- a Māori perspective : a thesis presented in partial fulfillment of the requirements for a Master of Arts in Psychology at Massey University, Manawatū, New Zealand
    (Massey University, 2013) Koti, Diane Maureen
    Palliative care and hospice service demand in New Zealand is predicted to increase, due to New Zealand's growing and ageing population. The Maori population is youthful, and ageing at a faster rate than non-Maori. Maori currently under utilise palliative care and hospice services, compared to non-Maori, but given the growing population, they will potentially be high future users of these services. Consequently, palliative care and hospice services, facilities, and health professionals must ensure they are competent to meet the needs of Maori. This project investigates Maori experiences and perceptions of palliative care and hospice services. Three Maori palliative care patients and four whanau members, were recruited. A kaupapa Maori (Maori cultural ideologies) approach underpins this research project, and uses purakau (Maori narratives) to illustrate the participants’ discussions. In-depth interviews were conducted, transcribed, and thematically analysed, exploring how they navigated their journey through palliative care and hospice services. Particular interest lies in their personal experiences and perceptions of whether palliative care and hospice meets their Maori cultural needs, and identifying any influential barriers or benefits. The findings were presented under five primary themes: 'Something is wrong', 'Knowledge and understanding', 'Hospice', 'Te ao hurihuri: Changing times', and 'Te tatau o te po: The door of the night'. The interpretation of the results highlighted the diversity between the participants' expectations, perceptions, and experiences of palliative care and hospice. Through interviewing these Maori patients and their whanau, their intimate purakau have established a foundation for further investigation of palliative care and hospice services for Maori. This research will not only contribute to the limited literature existing on Maori and palliation, but it will also provide a voice for those interviewed.
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    Staff perceptions of how music therapy can support palliative care patients in a New Zealand / Aotearoa hospice, with a particular focus on spiritual care : a thesis submitted in partial fulfillment of the requirements for the degree of Master of Music Therapy at the New Zealand School of Music, Wellington
    (Massey University, 2011) Squires, Keryn
    The purpose of this study was to explore the perceptions of staff from a hospice, in New Zealand / Aotearoa, regarding the use of music therapy in the care of dying patients. The study has a particular focus on spiritual aspects of palliative care in music therapy, as spirituality is an inherent aspect of the work done by caregivers in palliative care. Hospice staff were asked to reflect on what they knew and understood of music therapy before, and after, a music therapy student arrived at the hospice, and their narratives were explored to uncover the links between patients, music and spirituality. The aim of this was to identify what might be needed to increase knowledge, to improve referral processes, and to increase opportunities for collaborative team work. A cross-section of staff, i.e. two nurses, one doctor, an occupational therapist, and a counsellor, who were part of the palliative care team, were recruited to participate in two semi-structured interviews to discuss their perceptions of the potential for music therapy to support the spiritual needs of hospice patients. A qualitative approach was employed and narrative analysis was used to interpret the interviews. Narrative research emphasises the language of human understanding and in this research it involved gathering participants’ ‘stories’ of their evolving perceptions over time. Findings suggest the language used to describe spiritual care in music therapy was different for each participant although common meanings were drawn from the participants’ stories. Commonalities included: music therapy in the hospice was valued by the participants; some participants would like more knowledge to make an informed referral. In addition, staff understanding appeared to have increased over time partly due to educational seminars, sharing at team meetings, actual exposure to music therapy, informal conversations with staff, and participants’ growing knowledge of music therapy through their own personal process of learning.