Using network analysis to identify factors influencing the heath-related quality of life of parents caring for an autistic child

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dc.citation.volume152
dc.contributor.authorShepherd D
dc.contributor.authorBuchwald K
dc.contributor.authorSiegert RJ
dc.contributor.authorVignes M
dc.coverage.spatialUnited States
dc.date.accessioned2024-10-08T19:40:35Z
dc.date.available2024-10-08T19:40:35Z
dc.date.issued2024-09-01
dc.description.abstractBACKGROUND: Raising an autistic child is associated with increased parenting stress relative to raising typically developing children. Increased parenting stress is associated with lower parent wellbeing, which in turn can negatively impact child wellbeing. AIMS: The current study sought to quantify parenting stress and parent health-related quality of life (HRQOL) in the autism context, and further understand the relationship between them by employing a relatively novel statistical method, Network Analysis. METHODS AND PROCEDURES: This cross-sectional study involved 476 parents of an autistic child. Parents completed an online survey requesting information on parent and child characteristics, parent's perceptions of their autistic child's symptoms and problem behaviours, and assessed their parenting stress and HRQOL. OUTCOMES AND RESULTS: Relative to normative data, parent HRQOL was significantly lower in terms of physical health and mental wellbeing. The structure extracted by the Network Analysis indicated that child age and externalising behaviours were the main contributors to parenting stress, and that externalising behaviours, ASD core behavioural symptoms, and parenting stress predicted HRQOL. CONCLUSIONS AND IMPLICATIONS: Parental responses to child-related factors likely determine parent HRQOL. Findings are discussed in relation to the transactional model, emphasising the importance of both parent and child wellbeing.
dc.description.confidentialfalse
dc.edition.editionSeptember 2024
dc.format.pagination104808-
dc.identifier.author-urlhttps://www.ncbi.nlm.nih.gov/pubmed/39067240
dc.identifier.citationShepherd D, Buchwald K, Siegert RJ, Vignes M. (2024). Using network analysis to identify factors influencing the heath-related quality of life of parents caring for an autistic child.. Res Dev Disabil. 152. (pp. 104808-).
dc.identifier.doi10.1016/j.ridd.2024.104808
dc.identifier.eissn1873-3379
dc.identifier.elements-typejournal-article
dc.identifier.issn0891-4222
dc.identifier.number104808
dc.identifier.piiS0891-4222(24)00140-9
dc.identifier.urihttps://mro.massey.ac.nz/handle/10179/71624
dc.languageeng
dc.publisherElsevier Ltd.
dc.publisher.urihttps://www.sciencedirect.com/science/article/pii/S0891422224001409
dc.relation.isPartOfRes Dev Disabil
dc.rights(c) The author/sen
dc.rights.licenseCC BYen
dc.rights.urihttps://creativecommons.org/licenses/by/4.0/en
dc.subjectAutism spectrum disorder
dc.subjectHealth-related quality of life
dc.subjectNetwork analysis
dc.subjectParenting
dc.subjectHumans
dc.subjectQuality of Life
dc.subjectMale
dc.subjectFemale
dc.subjectParents
dc.subjectChild
dc.subjectCross-Sectional Studies
dc.subjectParenting
dc.subjectStress, Psychological
dc.subjectAdult
dc.subjectAutistic Disorder
dc.subjectChild, Preschool
dc.subjectMental Health
dc.subjectAutism Spectrum Disorder
dc.subjectMiddle Aged
dc.subjectAdolescent
dc.subjectSurveys and Questionnaires
dc.subjectProblem Behavior
dc.subjectHealth Status
dc.titleUsing network analysis to identify factors influencing the heath-related quality of life of parents caring for an autistic child
dc.typeJournal article
pubs.elements-id491014
pubs.organisational-groupOther
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