Multi-modal sleep intervention for community-dwelling people living with dementia and primary caregiver dyads with sleep disturbance: protocol of a single-arm feasibility trial

Verma S; Varma P; Brown A; Bei B; Gibson R; Valenta T; Pietsch A; Cavuoto M; Woodward M; McCurry S; Jackson ML

Multi-modal sleep intervention for community-dwelling people living with dementia and primary caregiver dyads with sleep disturbance: protocol of a single-arm feasibility trial

dc.citation.volume	11
dc.contributor.author	Verma S
dc.contributor.author	Varma P
dc.contributor.author	Brown A
dc.contributor.author	Bei B
dc.contributor.author	Gibson R
dc.contributor.author	Valenta T
dc.contributor.author	Pietsch A
dc.contributor.author	Cavuoto M
dc.contributor.author	Woodward M
dc.contributor.author	McCurry S
dc.contributor.author	Jackson ML
dc.contributor.editor	Keogh J
dc.date.accessioned	2024-12-12T22:02:18Z
dc.date.available	2024-12-12T22:02:18Z
dc.date.issued	2023-01-01
dc.description.abstract	Background. Disturbed sleep is common among people living with dementia and their informal caregivers, and is associated with negative health outcomes. Dyadic, multi-modal interventions targeting caregiver and care-recipient sleep have been recommended yet remain limited. This protocol details the development of a singlearm feasibility trial of a multi-modal, therapist-led, six-week intervention targeting sleep disturbance in dyads of people living with dementia and their primary caregiver. Methods. We aim to recruit 24 co-residing, community-dwelling dyads of people living with dementia and their primary informal caregiver (n D 48) with sleep concerns (Pittsburgh Sleep Quality Index ≥5 for caregivers, and caregiver-endorsed sleep concerns for the person living with dementia). People who live in residential care settings, are employed in night shift work, or are diagnosed with current, severe mental health conditions or narcolepsy, will be excluded. Participants will wear an actigraph and complete sleep diaries for two weeks prior, and during the last two weeks, of active intervention. The intervention is therapist-led and includes a mix of weekly small group video sessions and personalised, dyadic sessions (up to 90 min each) over six weeks. Sessions are supported by a 37-page workbook offering strategies and spaces for reflections/notes. Primary feasibility outcomes are caregiver: session attendance, attrition, and self-reported project satisfaction. Secondary outcomes include dyadic self-reported and objectively-assessed sleep, depression and anxiety symptoms, quality of life, and social support. Self-report outcomes will be assessed at pre- and postintervention. Discussion. If feasible, this intervention could be tested in a larger randomised controlled trial to investigate its efficacy, and, upon further testing, may potentially represent a non-pharmacological approach to reduce sleep disturbance among people living with dementia and their caregivers.
dc.description.confidential	false
dc.edition.edition	2023
dc.identifier.citation	Verma S, Varma P, Brown A, Bei B, Gibson R, Valenta T, Pietsch A, Cavuoto M, Woodward M, McCurry S, Jackson ML. (2023). Multi-modal sleep intervention for community-dwelling people living with dementia and primary caregiver dyads with sleep disturbance: protocol of a single-arm feasibility trial. PeerJ. 11.
dc.identifier.doi	10.7717/peerj.16543
dc.identifier.eissn	2167-8359
dc.identifier.elements-type	journal-article
dc.identifier.issn	2167-8359
dc.identifier.number	e16543
dc.identifier.uri	https://mro.massey.ac.nz/handle/10179/72301
dc.language	English
dc.publisher	PeerJ Inc.
dc.publisher.uri	https://peerj.com/articles/16543/
dc.relation.isPartOf	PeerJ
dc.rights	(c) 2023 The Author/s
dc.rights	CC BY 4.0
dc.rights.uri	https://creativecommons.org/licenses/by/4.0/
dc.subject	Dementia
dc.subject	Caregivers
dc.subject	Insomnia
dc.subject	Cognitive behavioural therapy
dc.subject	Intervention
dc.subject	Feasibility
dc.title	Multi-modal sleep intervention for community-dwelling people living with dementia and primary caregiver dyads with sleep disturbance: protocol of a single-arm feasibility trial
dc.type	Journal article
pubs.elements-id	486264
pubs.organisational-group	Other