Accessing diagnosis and treatment: The experience of cancer as wrangling with the system

Simple item page
dc.citation.volume5
dc.contributor.authorDew K
dc.contributor.authorChamberlain K
dc.contributor.authorEgan R
dc.contributor.authorBroom A
dc.contributor.authorDennett E
dc.contributor.authorCunningham C
dc.date.accessioned2024-04-30T02:56:43Z
dc.date.accessioned2024-07-25T06:51:37Z
dc.date.available2024-03-20
dc.date.available2024-04-30T02:56:43Z
dc.date.available2024-07-25T06:51:37Z
dc.date.issued2024-06
dc.description.abstractLong term cancer survival is increasingly prevalent, and the consequences are of sociological and clinical interest. In this paper we deploy the concept of wrangling to emphasise the everyday tussle of survivorship and processes of navigating pathways through what can be an unwelcoming environment. From 2020 to 2022 81 interviews were conducted with people, Māori and non-Māori, throughout Aotearoa New Zealand identified as exceptional cancer survivors, living with a diagnosis of cancer from four to 37 years. Categories of wrangling discussed by participants included wrangling with the public drug-buying agency in Aotearoa New Zealand, wrangling between private and public healthcare systems, subaltern wrangling and wrangling across regions. Wrangling could be driven by the person with the cancer diagnosis, undertaken on behalf of that person by others including family and health professionals, and undertaken by the community. We argue that for most people with long-term cancer survival wrangling is a social practice, but the capacity to succeed in that practice is dependent on a range of factors, including levels of economic, cultural, and social capital. The concept of wrangling provides a contrast to an overemphasis in the survivorship literature on cancer as an individual experience; one largely disconnected from the art and practice of managing (often unwieldy and flawed) systems of care.
dc.description.confidentialfalse
dc.edition.editionJune 2024
dc.identifier.citationDew K, Chamberlain K, Egan R, Broom A, Dennett E, Cunningham C. (2024). Accessing diagnosis and treatment: The experience of cancer as wrangling with the system. SSM - Qualitative Research in Health. 5.
dc.identifier.doi10.1016/j.ssmqr.2024.100418
dc.identifier.eissn2667-3215
dc.identifier.elements-typejournal-article
dc.identifier.issn2667-3215
dc.identifier.number100418
dc.identifier.piiS2667321524000271
dc.identifier.urihttps://mro.massey.ac.nz/handle/10179/71042
dc.languageEnglish
dc.publisherElsevier B.V.
dc.publisher.urihttps://www.sciencedirect.com/science/article/pii/S2667321524000271
dc.relation.isPartOfSSM - Qualitative Research in Health
dc.rights(c) 2024 The Author/s
dc.rightsCC BY 4.0
dc.rights.urihttps://creativecommons.org/licenses/by/4.0/
dc.subjectCancer survivorship
dc.subjectWrangling
dc.subjectCultural health capital
dc.subjectAotearoa New Zealand
dc.titleAccessing diagnosis and treatment: The experience of cancer as wrangling with the system
dc.typeJournal article
pubs.elements-id487965
pubs.organisational-groupCollege of Health
Files
Original bundle
Now showing 1 - 1 of 1
Thumbnail Image
Name:
Published version
Size:
433.83 KB
Format:
Adobe Portable Document Format
Description:
Download
Collections
Journal Articles