Māori women's perspectives of raising a loved one who has autism (Takiwātanga) : a thesis presented in partial fulfilment of the requirements for the degree of Doctor of Philosophy in Psychology, Massey University, Palmerston North, Manawatū, Aotearoa New Zealand

Abstract

This thesis presents research that explored the understandings, worldviews, and approaches of eight Māori māmā (mothers) with children (tamariki) or adolescents (rangatahi) who have been diagnosed with autism (takiwātanga) in Aotearoa New Zealand. An interpretivist qualitative research design was utilised that combined methods from Western methodologies and Kaupapa Māori and Mana Wahine theory and research. The methodology was transformative (whakaahua) in nature, as the concepts behind the Western methodological tools were transformed into the concepts of te ao Māori (the Māori worldview) through the application of Kaupapa Māori and Mana Wahine theory. Eight Māori māmā attended one of four small focus groups consisting of two māmā and the researcher, during which they were encouraged to create an artwork while telling their lived experience of takiwātanga through pūrākau (narratives). Over approximately four hours, the māmā were asked to describe how they navigated the New Zealand education and health systems, and their home and community, with their tamariki and rangatahi with takiwātanga. The pūrākau revealed that the māmā had brought about a transformation of their own by resisting the Western deficit-based model of autism and drawing on their cultural understanding of takiwātanga to change their negative Western-based experiences into positive Indigenous-based ones. This led to the development of a model inspired by the taiaha, a Māori weapon of war, that demonstrates how a deficit-based Western ideology about autism can be transformed into a strengths-based Indigenous ideology about takiwātanga, from both the researcher’s perspective and that of the participants. The findings also identified strong connections between the māmā and those professionals and others who supported them, whom they called “game changers”. Professionals who were not supportive were circumnavigated or dismissed as the māmā held onto their own expertise and developed their own knowledge about takiwātanga. The te ao Māori concepts of whakawhanaungatanga (relationship building), manaakitanga (showing respect, generosity and care for others) and tuakana-teina (the relationship between an older [tuakana] person and a younger [teina] person) were woven throughout the pūrākau, which the māmā drew on to strengthen their mana wahine (power as women) and mātauranga wahine (female knowledge). The thesis concludes that cultural competence for registered professionals in education and health should include formal assessments of their knowledge of te ao Māori concepts such as manaakitanga, whakawhanaungatanga, and tuakana-teina in relation to takiwātanga.